Your innovative guide to understanding unmet needs and major points
of concern for breast cancer patients. Get insights into real patient journey,
treatment experience and hot-button topics for discussion with our series
of interactive web-based reports.
Unmet needs and expectations
of breast cancer patients: AI-based
patient voice analysis (2021-2022)
of breast cancer patients: AI-based
patient voice analysis (2021-2022)
What makes us different?
Proprietary AI-based technology
Cross-country / cross-region analysis
Patient Voice focused research
Science-oriented approach
Multilingual data processing
Compliance with data protection laws
Report
Description
With oncology being a fast-developing sector of growth in the pharmaceutical industry, Semantic Hub© offers a series of interactive web reports addressing unmet needs and treatment experience of patients with breast cancer and their caregivers. Each report embraces Patient Voice in one country taking into account its cultural background and specific features of its healthcare system. All data are retrieved in a compliant mode from open online sources with the use of innovative artificial intelligence tools owned by Semantic Hub. As Patient Voice increasingly becomes an inherent part of the decision-making process in the pharmaceutical industry and the driver of innovation and co-creation, this report allows sneaking a peek behind the scenes and having a closer look at the statistical data and infographics based on real patients’ and caregivers’ stories. The report is interactive and allows users to navigate through its chapters as well as open citations examples and use infographics.
Disclaimer
This report contains no personal data or patients’ and caregivers’ profiles which have not been collected in the course of the study. All data are anonymised in accordance with applicable legislation. Selected citations have been modified to secure privacy of their authors while preserving the original meaning of their messages. Names appearing in the messages and/or geographies that allowing to trace a patient have been blinded.
Pharmacovigilance: in these reports, we do not analyse treatment experience with respect to separate drugs. Our common practice is to report all adverse events in accordance with customers' policies. However, these reports do not cover the detailed analysis of treatment options, so such reporting is not relevant. All treatment names are blinded.
Report
Key issues
Each report contains the detailed analysis of various metrics related to patient journey, diagnostics and treatment experience in the given country including the data on breast cancer stages and molecular subtypes profile. Chapters dedicated to the discussion of medical and non-medical issues by patients and caregivers (e.g. chemotherapy, breast reconstruction, body weight, insurance coverage) spotlight their main points of concern as well as topics that seem to be of less importance. Each report also highlights unmet informational needs of patients and caregivers relevant to those who are willing to tailor-make local awareness campaigns or navigation strategies. Special focus is made on discussions around COVID-19 and its impact on breast cancer patients and their patient / treatment journey.
Table of contents
- Methodology
- Input data. General statistics
- Breast cancer stages
- Molecular subtypes profile
- Patients’ agenda
- Patients’ unmet needs at various stages of the patient journey
- Diagnostics journey
- Diagnostics journey. Subtopics
- Waiting for diagnosis
- Testing history. Psychological burden
- Triggers, family history and genetics
- Understanding stages
- Understanding tumour profiles
- Lymph node involvement
- Understanding diagnostic procedures
- Best practices in diagnostics and self-exam
- Unmet informational needs
- Key takeaways
- Experience with the healthcare system
- Experience with the healthcare system. Subtopics
- Patient-doctor Interaction
- Role of a nurse
- Insurance and disability
- Being in a hospital / undergoing treatment
- Finding help online
- Unmet informational needs
- Key takeaways
- Treatment journey and burden
- Treatment journey and burden. Subtopics
- Burden of treatment choice, second opinion
- Seeking advice on a treatment plan
- Preparation and start of treatment
- Tolerability discussion. Patient-reported AEs
- Managing pains and side effects
- Heart health
- Unmet informational needs
- Treatment options
- Chemotherapy issues
- CIT issues
- Hormonal therapy issues
- Radiotherapy issues
- Target therapy issues
- Cannabinoids. Forms and topics of discussion
- Cannabinoids. Quotes
- Key takeaways
- Surgery
- Surgery. Subtopics
- Support on the decision to undergo surgery
- Preparing for surgery
- Lymph node removal
- Reconstruction vs. prosthetics
- Managing post-surgery issues
- Post-surgery clothing
- Unmet informational needs
- Key takeaways
- Feeling well and staying beautiful
- Feeling well and staying beautiful. Subtopics
- Hair, skin and nails
- Care products
- Body weight
- Unmet informational needs
- Key takeaways
- Routine life
- Routine life. Subtopics
- Diets and nutrition
- Vitamins and supplements
- Sleeping problems
- Smoking and alcohol
- Physical activity
- Immunity
- Career and independence
- Personal life
- Unmet informational needs
- Key takeaways
- Emotional support
- Emotional support. Subtopics
- Sharing lifehacks to accept the diagnosis
- Mutual support in keeping fighting and feeling strong
- Letting yourself grieve
- Ways to cope with anxiety and negative emotions
- Unmet informational needs
- Key takeaways
- Websites recommended by patients
- Summary of business insights
Report
Who should purchase?
This report is a source of insights directly retrieved from open social media in different countries that can be used by a wide range of experts: from market access and R&D professionals to healthcare professionals and researchers. Purchase the reports if you wish to:
Understand cultural and regional drivers behind
the local healthcare system and patients’ choices- Gain a detailed perspective on breast cancer patients and
their caregivers’ unmet informational needs, quality of life
and treatment / drug experience - Develop evidence-based strategies or research
approaches
- Identify weak spots and focus areas to reshape or fine-
tune your business or research strategy in the region - Maximise knowledge and gain unexpected insights
about patient journey and treatment experience - Get an insight into breast cancer related
experience from a completely different angle
Semantic Hub
Methodology
Hybrid Intelligence: AI + human experts
Semantic Hub carries out Internet screening to detect patient stories (first-hand testimonies of patients and their caregivers) related to conditions or symptoms of interest. Such stories are organised in an anonymised database for further detailed analysis
AI-Platform: The collected messages are processed using deep semantic analysis and transformed into structured “knowledge graphs”. Meaningful information (symptoms, treatment names, symptom journey, treatment experience, etc.) is extracted
Hybrid Intelligence: AI + human experts
The extracted graphs are merged into a knowledge base, then traditional tools of biostatistics and visualization are applied to such data to build infographics, extract actionable insights, detect cases of interest, and make conclusions / recommendations
Semantic Hub
About us
Semantic Hub is a global company that brings you a range of innovative digital solutions to listen to Patient Voice with a focus on severe and rare conditions. Using multilingual natural language processing (NLP) we help our customers better understand patients' unmet needs and successfully tailor their strategies in the respective markets.
Our solutions:
- Stakeholder mapping
- Patient support and engagement
- Product differentiation
- Early detection
- Patient recruitment for clinical trials
- Tailor-made business and research-oriented projects